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  1. #1
    belimom's Avatar
    belimom is offline Our lives begin to end the day we become silent about things that matter ~MLK Jr
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    Persistent Genital Arousal Disorder leads to suicide of woman, age 39

    This story is heartbreaking. Because there is no diagnosis code, insurance wouldn't pay for treatment. She couldn't hold down a job, couldn't get relief, and was in constant pain due to this condition. Seems like with all the sexual disorders for men, more research could be done in this area for woman - and then maybe someone could have taken her seriously or offered her some help.

    She committed suicide just as the paper was running her story --- in hopes of getting some attention for her. She thanked them for the publicity, but succeeded in suicide after numerous previous attempts.

    ----------------------------------------------------------------------------

    Orgasm disorder leads to suicide

    The 39-year-old took her own life after struggling with the condition for 17 years, reports the Tampa Bay Times. PGAD is characterized by persistent, unwanted genital sensation or arousal that can be devastating for sufferers.
    .....

    http://www.cbsnews.com/2300-204_162-10014792.html
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    My posts are meant to help think through possibilities and are strictly an additional opinion under circumstances when many points of view need to be considered. I apologize in advance to anyone whose potential involvement is contemplated in error. Please understand that much of what is happening is merely brainstorming during unfortunate events.

  2. #2
    belimom's Avatar
    belimom is offline Our lives begin to end the day we become silent about things that matter ~MLK Jr
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    The original article, started before her suicide, in hopes of getting her some help. Unbelievable - the callousness of the doctor who made the comment quoted below:

    ...................................

    Persistent genital arousal disorder brings woman agony, not ecstasy

    http://www.tampabay.com/features/hum...cstasy/1263980

    ..... This is the point in Gretchen Molannen's story that invariably makes people snicker, or wince, or make jokes like: "I wish my wife had that." That one came from a doctor...
    Fly high and free, Jhessye ~

    My posts are meant to help think through possibilities and are strictly an additional opinion under circumstances when many points of view need to be considered. I apologize in advance to anyone whose potential involvement is contemplated in error. Please understand that much of what is happening is merely brainstorming during unfortunate events.

  3. #3
    belimom's Avatar
    belimom is offline Our lives begin to end the day we become silent about things that matter ~MLK Jr
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    I know this is a 'taboo' subject in our society - orgasms. Especially women and orgasms. This woman's needless suffering and death really has angered me because of this taboo - b/c there is no code for insurance coverage, b/c the judge ruled she just wanted money, etc.

    The article about her death: Woman featured in Times story about sexual disorder commits suicide

    http://www.tampabay.com/news/health/...cle1264559.ece

    From that link:


    http://www.tampabay.com/multimedia/a...12_250771d.jpg
    Fly high and free, Jhessye ~

    My posts are meant to help think through possibilities and are strictly an additional opinion under circumstances when many points of view need to be considered. I apologize in advance to anyone whose potential involvement is contemplated in error. Please understand that much of what is happening is merely brainstorming during unfortunate events.

  4. #4
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    RIP dear lady, may you finally find the peace you sought so long. may your story also be used to help others understand and bring help to those that suffer as you did.
    we need to encourage harder sentencing on those that are harming our children. our children are worth it!!

    stop the circus!! these children as all children deserve to be found and justice brought forth for what has happened to them!!


  5. #5
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    How awful to be suffering and have to put up with idiots who make light of it.

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  6. #6
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    i can understand the judge wanting to be cautious in his finding and i don't really think it would have made a whole lot of difference in her case. she seems to have been at the end of her rope to begin with sadly. and i'm sure it would have opened the door for some to take advantage of it...but i really wish this woman had been able to find help.
    we need to encourage harder sentencing on those that are harming our children. our children are worth it!!

    stop the circus!! these children as all children deserve to be found and justice brought forth for what has happened to them!!


  7. #7
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    I'm just sad to see so many people come forward after reading the article, all wanting to help- so tragic that it was too late. This poor woman had come so far, but couldn't see that there was a light at the end of the tunnel.

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  8. #8
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    so sad. how horrible to be so alone and so misunderstood as she was. RIP Gretchen.
    RIP Megan Sharpton, you can rest now. We'll be your voice.

  9. #9
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    After reading several articles on her. I think she had constant feelings that like those felt during arousal and did not have constant spontaneous orgasms, but they were what gave a little relief. Seems like it would be like having constant bladder infection or urethritis. I didn't like how the article focused on arousal more than the pain involved that felt similar to arousal. I guess they tried to help her though. You'd think a judge would grant social security based on mental after suicide attempts and constant thoughts of it.

  10. #10
    belimom's Avatar
    belimom is offline Our lives begin to end the day we become silent about things that matter ~MLK Jr
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    Quote Originally Posted by athy View Post
    i can understand the judge wanting to be cautious in his finding and i don't really think it would have made a whole lot of difference in her case. she seems to have been at the end of her rope to begin with sadly. and i'm sure it would have opened the door for some to take advantage of it...but i really wish this woman had been able to find help.
    Quote Originally Posted by txsvicki View Post
    After reading several articles on her. I think she had constant feelings that like those felt during arousal and did not have constant spontaneous orgasms, but they were what gave a little relief. Seems like it would be like having constant bladder infection or urethritis. I didn't like how the article focused on arousal more than the pain involved that felt similar to arousal. I guess they tried to help her though. You'd think a judge would grant social security based on mental after suicide attempts and constant thoughts of it.
    I agree. In reading the articles, it's also sad to hear of the other women with the same problem. They've had nerves blocked and one even had her clitoris removed. But it still didn't solve the problem.

    I have never heard of this disorder until reading this article -- I really hope more research is done. These women and others deserve that much. If a man was walking around with a visible erection from continuous arousal, more attention would be paid to the problem. But for a woman, there's no visual sign of it, so it's like "it's all in your head".

    I hope the article and especially her tragic suicide brings more attention to this problem.
    Fly high and free, Jhessye ~

    My posts are meant to help think through possibilities and are strictly an additional opinion under circumstances when many points of view need to be considered. I apologize in advance to anyone whose potential involvement is contemplated in error. Please understand that much of what is happening is merely brainstorming during unfortunate events.


  11. #11
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    I totally agree with the notion that if this were a condition men suffered from, the stigma would likely be (mostly) removed, and research/treatment would have been a higher priority. Sad.

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  12. #12
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    Quote Originally Posted by belimom View Post
    I agree. In reading the articles, it's also sad to hear of the other women with the same problem. They've had nerves blocked and one even had her clitoris removed. But it still didn't solve the problem.

    I have never heard of this disorder until reading this article -- I really hope more research is done. These women and others deserve that much. If a man was walking around with a visible erection from continuous arousal, more attention would be paid to the problem. But for a woman, there's no visual sign of it, so it's like "it's all in your head".

    I hope the article and especially her tragic suicide brings more attention to this problem.
    bbm Agree with you there is no visual sign like an erection but I do wonder if it is a mental versus a physical disorder.

    I haven't read all the articles so forgive me if the topic of perhaps it being a mental disorder or illness was already discussed.

    Thoughts?

    Sad for this woman.
    Justice for Holly Bobo🎀

  13. #13
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    Quote Originally Posted by ~n/t~ View Post
    bbm Agree with you there is no visual sign like an erection but I do wonder if it is a mental versus a physical disorder.
    I'm definitely not an expert, but everything I've read points to a physical disorder- something to do with damaged nerves. It's apparent to me that while the condition itself may present physically, the toll it takes is also mental.

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  14. #14
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    Quote Originally Posted by CMac2 View Post
    I'm definitely not an expert, but everything I've read points to a physical disorder- something to do with damaged nerves. It's apparent to me that while the condition itself may present physically, the toll it takes is also mental.

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    Yes, I read the same regarding the assumption that damaged nerves may be the cause but there is a lot more research to be done and I hope they explore the possibility that it may be "brain" related. As an example: I've read where castration doesn't necessarily stop the urges and behavior therapy and medication needs to be administered along with the procedure for it to be effective.

    I'm no expert either but just pondering other possible causes. Hope they find a treatment.
    Justice for Holly Bobo🎀

  15. #15
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    I agree. I think there are disorders that manifest in the way of physical symptoms that are rooted in the brain- literally, it's all in one's head- though I understand everyone (here, at least, in this forum) knows it's real, and nothing to take lightly. I think of phantom limb syndrome as an example- the very real pain someone who's had a limb amputated feels in the "area" that no longer exists. Sorry- thought of the limb thing because of another thread I'm following. It's on the brain, I guess- no pun intended!

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