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  1. #46
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    American Academy of Neurology on brain death:

    Evidence-based guideline update:
    Determining brain death in adults
    Report of the Quality Standards Subcommittee of the American
    Academy of Neurology
    http://www.neurology.org/content/74/....full.pdf+html

  2. #47
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    On brain death and the Jahi McMath story
    by Christopher Johnson MD


    http://www.chrisjohnsonmd.com/2014/0...ampaign=buffer

  3. #48
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    Sad saga of Jahi McMath made sadder by family's lawyer, readers say

    http://touch.latimes.com/#section/-1.../p2p-78997305/

  4. #49
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  5. #50
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  6. #51
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  8. #53
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    Physicians discuss how they handle brain death and uncooperative families

    Brain death and uncooperative families: an online ethics discussion by physicians as to how they handle these situations.

    http://www.ccm-l.org/discussion1/Ethics/uncoop.html

  9. #54
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    July 2014 Essence Magazine article, "Fighting for Jahi". Interview with Nailah Winkfield

    http://www.essence.com/2014/06/05/ja...ilah-winkfield

  10. #55
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    Nailah Winkfield to receive award Aug 15, 2014 at gala for New Beginnings in NY

    Article with many details about the New Beginnings group in NY, headed by Allyson Scerri (a former hairdresser), whose father is a TBI survivor.

    Also on hand that evening for a special recognition will be the parents of Jahi McMath, a 13-year-old California girl declared brain dead following surgery to correct sleep apnea. Her parents refused to accept the doctor's judgment and fought the hospital in court in a case that garnered national media attention. Jahi's mother, Nailah Winkfield, was able to get her daughter released and transferred in March to a hospital in New Jersey, where she remains today. She is "doing well," Scerri said. Nailah Winkfield and her husband Marvin will be present at the New Beginnings gala to receive an award from the organization.
    http://riverheadlocal.com/local-news...survivor-group


  11. #56
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    Parents of Jahi McMath honored at New Beginnings Gala Aug 15, 2014

    Photo of honorees at link

    (*KZ note-- I think the article may be in error-- Jahi was released in December 2013, not "March")

    http://riverheadlocal.com/community-...r-give-up-hope

    Other honorees at the gala were the parents of Jahi McMath, a 13-year-old California girl declared brain dead following surgery to correct sleep apnea eight months ago.
    Jahi's parents were able to get her released in March and admitted to a hospital in New Jersey, where she remains today.

    "She has good days and bad days," Jahi's mother, Nailah Winkfield, told the hushed crowd in the Sea Star ballroom last night.

    "Some days I ask her to move her left hand, or her right hand and she does...I'm her mom and I know that my daughter is in there," Winkfield said through tears.

    Winkfield credited Scerri and New Beginnings, which said they'd provide 24/7 care for Jahi, for helping convince a California judge to sign an order authorizing the child's release from the hospital. She was removed by the coroner's office.

    "My child has a death certificate," Winkfield said.

  12. #57
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    "Reports that Jahi McMath is coming home are false"

    OAKLAND -- A New York facility that has tried to help Jahi McMath, the Oakland girl declared brain-dead last year, put out a call for back-to-school supplies, bedding and clothes for the teen, saying she was "coming home," and that the New Beginnings Community Center was loading a truck with donations.

    But Christopher Dolan, the attorney for the family of 13-year-old Jahi, said the request on the Facebook page of the Medford, New York-based New Beginnings was false and the girl's mother isn't asking for anything but prayers for her daughter.

    The original post was removed a short time later Sunday afternoon.
    .

    While Winkfield reportedly told Dolan she did not ask for support through New Beginnings, she does have a connection to the center.

    On Saturday, a local news site posted a story about New Beginnings honoring Jahi's mother and Marvin Winkfield, Jahi's stepfather, at a summer gala in part because they refused to accept doctors' findings and fought the hospital in court, the story says.
    http://www.mercurynews.com/crime-cou...oming-home-are

  13. #58
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    Jahi McMath's case begins to appear in the professional and scientific literature

    Published Sept 19, 2014

    The Jahi McMath case was the subject of a conference of neurology and ethics professionals at Mayo Clinic, which led to the current articles in the professional journal "Neurology." (see abstracts to follow)

    http://www.medscape.com/viewarticle/832001

    Today, Jahi continues to receive care at a facility (name and location undisclosed) that agreed to take her after Children's Hospital released her body. The facility has fitted Jahi with a feeding tube, and her mother gives her a weekly manicure and pedicure.
    The case has garnered widespread media attention and has led to a "legal quagmire," Christopher M. Burkle, MD, JD, and his colleagues from Mayo Clinic, Rochester, Minnesota, write in a review published online September 12 in Neurology.

    The Mayo Clinic physicians decided to analyze the pertinent medical, legal, and ethical issues raised by the McMath case to help doctors and others respond to questions about brain death.
    The fact that Jahi is still supported by artificial means, although remarkable, is not exclusive of a diagnosis of brain death. "In exceptional cases, prolonged support is possible as long as oxygenation, circulation, nutrition, and treatment of multiple medical complications is provided," they write.
    http://www.neurology.org/content/ear...00000895.short

    Abstract
    The tragic case of Jahi McMath reignited public controversy in the United States over the concept, practice, and legal status of brain death.1 Brain death is the familiar though misleading term for human death determination on the basis of irreversible cessation of the clinical functions of the brain. Burkle et al.2 have written an insightful analysis of the McMath case and provided a useful review of the salient ethical and legal issues that it raises. We fully endorse their comments and conclusions, which reflect the prevailing medical and legal standards of brain death in the United States. As supporters of brain death, our work has attempted to consolidate its conceptual, scientific, medical, and legal foundation. Like the senior author, Eelco Wijdicks, we have worked with the American Academy of Neurology to further brain death professional education and quality medical practice.
    http://www.neurology.org/content/ear...00000883.short

    Abstract
    Neurologic determination of brain death is a complex assessment that may be misunderstood by nonspecialists and families. Recent guidelines clarify how to proceed with such an examination and are available to physicians, with the time of death in adults and children being determined by the last defining testóthe apnea test. This core principle in neurology has been challenged recently in court and resulted in an unprecedented continuation of care in a 13-year-old child declared dead. This review comments on the medical, legal, and ethical quandaries introduced by this case and highlights the major elements of consensus on matters related to brain death that have been forged over 3 decades of sustained medical and societal debate. A clear appreciation by physicians and the public of the diagnostic determination of death following loss of brain function will help to prevent similar conflicts from occurring in the future.

  14. #59
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    There have been no updates to the "Keep Jahi McMath on Life Support" FB site since July 10, 2014. (10 weeks)

    https://www.facebook.com/keepJahiMcmathonlifesupport

  15. #60
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    Jahi McMath: Family seeks to have brain-death ruling overturned, girl declared alive

    Jahi McMath: Family seeks to have brain-death ruling overturned, girl declared alive
    Posted: 10/01/2014 05:21:32 PM PDT2 Comments | Updated: about 2 hours ago

    http://www.insidebayarea.com/news/ci...n-death-ruling

    OAKLAND -- An attorney for the family of Jahi McMath says new tests show the 13-year-old girl has regained brain activity, and he is asking a Bay Area court to take the unprecedented step of reversing its finding that she is dead.

    In court documents filed Tuesday, attorney Christopher Dolan challenges long-standing medical and legal definitions of death on behalf of the Oakland girl, who has been kept on machines that feed her and keep her organs functioning since a medical mishap in December.

    Experts say Jahi's recovery would be nothing short of a miracle. Unlike a coma, brain death is the loss of all brain function, an irreversible and universally accepted form of death. Jahi would be the first known person to regain consciousness after a declaration of brain death, experts say.

    "It's the only case of its kind ever," Dolan said by phone Wednesday. "Jahi is 'Patient 1.' This is a real person we are talking about, a live person who feels pain. She isn't suffering."
    A test last year performed by a court-appointed physician from Stanford showed no brain activity because of the swelling of her brain, according to the court papers. The swelling has receded, Dolan says, and the new tests show something different.

    Arthur Caplan, director of the division of medical ethics at New York University's School of Medicine, said any recovery from brain death would be a first and in this case "miraculous since she was declared dead three times."

    "This would force us to re-examine the whole nature of death in America," Caplan said. "But I don't believe it."
    Attorneys for UCSF Benioff Children's Hospital Oakland, where Jahi was first treated, have filed documents asserting that "there are no substantive grounds and no available procedures for any challenge" to the court's finding that Jahi is brain dead.
    The new court filings are the first major development in Jahi's story in months.
    More articles as the story is picked up:

    http://www.mercurynews.com/breaking-...n-death-ruling

    http://www.sfgate.com/bayarea/matier...ve-5795112.php

    http://sanfrancisco.cbslocal.com/201...eclared-alive/

    The family planned a press conference for Friday when they plan to provide evidence that Jahi is not brain dead.
    If anyone finds out more info about the Friday press conference, please post it.
    Last edited by K_Z; 10-01-2014 at 10:55 PM. Reason: add links

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