I had a problem with weight gain when I was younger, I could not keep it on then it switched to being very obese even though I was severely malnutritioned. I lost over 2/3 of my hair over the last two years. I also have osteoporosis even though I'm not in menopause, I take my vitamins, and Im very overweight but have lost half of my weight since going gluten free. Im also only 34.
Symptoms are very different with everyone except it leads to cancer, osteoporosis, nerve damage, severe nutritional deficiencies, glaucoma,autoimmune disorders, and of course early death.
Its hard because its even in most cleaning products, paper towels, soaps, shampoos you name it and many brands have it in it. Its even in playdoh, envelopes, and some stickers.
Some people have so much neurological damage you end up in wheelchairs. Common misdiagnosis's are chronic fatigue syndrome, multiple sclerosis, and fibromyalgis, and ibs (which is a joke diagnosis it just means they have no idea what is wrong with you.) The testing is horribly inaccurate and has only been around since the 1960's and not been updated at all. Right now genetic testing through enterolab is going before the fda to get approval, I already had mine through there and Im getting my daughter tested.
www.celiac.com is a good resource for information on it. Dr's are not properly trained in it either. I went to the top gastro dr in this area and he told me I couldnt have it because I was fat (completely outdated information) I paid $350 to have my genetics tested and proudly returned with the results. I felt like I was going crazy, I couldnt find an answer and with diarrhea everyday for three years I finally had an answer and could get treatment. Not everyone though has diarrhea it took me years to get to that point.
Sorry for the long post its a complicated disorder that is very misunderstood still, even by the medical community.