Family battling Children’s Hospital to bring teen home for Christmas

Discussion in 'Up to the Minute' started by Reader, Dec 22, 2013.

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  1. Reader

    Reader New Member

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    http://natmonitor.com/2013/12/21/fa...ns-hospital-to-bring-teen-home-for-christmas/

    It’s a parent’s worst nightmare: you no longer have custody of your child even though you feel that you’ve done everything right. Unfortunately, that nightmare has become reality for the Pelletiers. Judge Joseph Johnston recently ruled that the state should maintain custody of the couple’s 15-year-old daughter Justina, according to the Boston Globe. While the judge plans to appoint a court investigator to take another look at the case, the Pelletiers were hoping to have their daughter home for the holidays.

    Justina’s case is a complicated one. Boston.com reports that Pelletier has spent most of the last ten months locked in a psychiatric ward at Boston Children’s Hospital.......more at link.....
     
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  3. Donjeta

    Donjeta Adji Desir, missing from Florida

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  4. Linda7NJ

    Linda7NJ New Member

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    A little shocking and very confusing!


    Sent from my iPhone using Tapatalk 2
     
  5. i.b.nora

    i.b.nora I am polka dot

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    Apparently The Globe did two articles about Justine (recently) prior to the one Donjeta linked to, but I can't seem to find them.
     
  6. Donjeta

    Donjeta Adji Desir, missing from Florida

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  7. i.b.nora

    i.b.nora I am polka dot

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    Well, I just finished reading Part One, and it really is a must read if at all possible.

    I think The Boston Globe lets one read maybe 10 articles a month at no cost. If a big box appears, try clicking the Collapse Button in the top right corner of the box to ... collapse it.
     
  8. belimom

    belimom Our lives begin to end the day we become silent ab

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    Reading now. How can they "prohibit" a second opinion? I've worked at hospitals and it has always been true in my experience that (in most cases) a hospital can release a patient into the care of another doctor - that they have to - if the patient/family chooses to change course.

    This makes no sense (bbm):


    .

    ETA: I've now read the entire article. This is maddening and absurd. If I learned one thing, it's to be careful what you sign at the hospital before admitting your child (or yourself). :(
     
  9. Zuri

    Zuri New Member

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    This disease is so rare that I doubt it is widely understood. My question is: Is Justina thriving in the psych ward, off her meds? If so, I think one has the answer. If not, the diagnosis of mito would stand and should be treated accordingly. JMO
     
  10. i.b.nora

    i.b.nora I am polka dot

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    I think there is plenty of blame or reason, all the way around.

    But, after reading all three Boston Globe articles, this from Part Two is notable to me:

    "In the bitter cold of last Thursday morning, on the final day of the trial to determine Linda and Lou Pelletier’s fitness as parents, Juvenile Judge Johnston prepared to hear testimony from the witness at the center of it all. Justina was wheeled into the fourth-floor courtroom of the Edward Brooke Courthouse in Boston.

    For the first time in this protracted case, the 15-year-old girl appeared in a courtroom to weigh in on her own future. Improbably, her hospitalization had consumed almost an entire year of her life.

    Korson, her doctor from Tufts, was the next scheduled witness.

    A gag order prohibited any of the parties from disclosing what anyone said on the stand. The judge is expected to issue his ruling as early as Friday on whether Justina will be returned to her parents."


    I wonder what Justine said in court?
     
  11. belimom

    belimom Our lives begin to end the day we become silent ab

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    Here is more about the judge appointing someone to review, as Reader mentioned in the original post:

     
  12. Zuri

    Zuri New Member

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    What a mess. I was just able to read Part 2 after clicking it several times, and also the West Hartford news article. My takeaway from this is that it is all about being right. The human being that is losing the most is Justina. Part 2 stated that Justina did not improve once placed in the psych unit, either due to her medical diagnosis or psych diagnosis or a combination of both. The only person in the articles that made the most sense was Christine Mitchell, the ethics person IMO. This teen wants to go back to her life at her school and that needs to be respected. The parents have made this very difficult IMO by threatening to sue everybody. That gains nothing. I really hope that Justina can go back to her school regardless of where she is housed. IMV that is a very important part of her treatment because that is what SHE wants. JMV
     
  13. SophieRose

    SophieRose New Member

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    From November Daily Mail:
    http://www.dailymail.co.uk/news/art...lletier-kidnapped-doctors-use-guinea-pig.html

     
  14. i.b.nora

    i.b.nora I am polka dot

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    According to Boston Globe article Part One:

    First of two parts

    Just after midnight on a Sunday last February, Linda Pelletier climbed into the passenger seat of an ambulance as her ailing teenage daughter lay in the back. They headed for Boston Children’s Hospital, on the advice of one of the girl’s doctors. A crippling storm had dumped 3 feet of snow on parts of New England, and every time the ambulance began to fishtail, Pelletier gasped.

    They were making the white-knuckled trip from Connecticut because 14-year-old Justina wasn’t eating and was having trouble walking. Just six weeks earlier, the girl had drawn applause at a holiday ice-skating show near her home in West Hartford, performing spins, spirals, and waltz jumps.

    But now Justina’s speech was slurred, and she was having so much trouble swallowing that her mother was worried her daughter might choke to death.

    When the ambulance finally made it to Longwood Avenue and pulled into the driveway of one of the nation’s top pediatric hospitals, the mother thought, “I’m saved.” Her relief wouldn’t last long.

    Growing up as the youngest of four girls in a family full of demonstrative personalities, Justina Pelletier stood out for her quiet demeanor.

    Justina had been sick on and off for several years. A team of respected doctors at Tufts Medical Center in Boston had been treating her for mitochondrial disease, a group of rare genetic disorders that affect how cells produce energy, often causing problems with the gut, brain, muscles and heart.

    Justina had gone to Children’s Hospital this time because the girl’s main specialist at Tufts, Dr. Mark Korson, wanted Justina to be seen by her longtime gastroenterologist, who had recently moved from Tufts to Children’s."
     
  15. SophieRose

    SophieRose New Member

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    So I assume Justina never got seen by the gastroenterologist?
     
  16. redheadedgal

    redheadedgal Active Member

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    i was incensed when my hometown paper chose to restrict viewing all of a sudden for non-subscribers and i began googling ways around it...

    i use IE, so for me, i go to Tools in the toolbar, then InPrivate Browsing.

    this opens a new window.

    cut and paste the URL (website address) you want to read into the new window and voila! you should now be able to read the desired article from most online papers.

    if you reach a point where you are prohibited from reading another article, just open a new InPrivate window.

    if you use another browser (Chrome, Firefox), just google how to use their InPrivate Browsing as i'm certain the option is available there too.

    hope this helps !!

    :seeya:
     
  17. i.b.nora

    i.b.nora I am polka dot

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    I think these people are a little "shifty". Of course I could be wrong.

    This document makes it seem like they managed to forestall foreclosure on their home for 4 or 5 years?

    http://www.connecticuthouseauctions.com/property/31-birch-hill-drive-west-hartford-ct/8673

    And then there was the Chapter 13 filing on May 2, 2013 by Christopher H. McCormick representing Louis G. Pelletier and Linda D. Pelletier. It mentions the house as well as a couple of medical sounding type places.

    I don't know if all that is normal or nefarious or somewhere in between.
     
  18. Zuri

    Zuri New Member

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    Thank you Reader for bringing yet another fascinating human interst case/story to us here.
     
  19. Reader

    Reader New Member

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    YW....Thanks to all of the posters for adding to the case information. I can't wait to see how the judge settles this matter.

    It seems to me so far that Justina was doing better under the care of Dr. Korson. I've never heard of a hospital limiting the parents' contact to this degree, unless child abuse was involved, and that doesn't seem indicated (change to proven to me so far).

    I'm wondering what Dr. Korson thinks of what has happened to his patient. He tried to set up a conference of all parties involved in the girl's care and this was refused. ?? I also thought this was interesting:

    From Donjeta's link in #2.
     
  20. i.b.nora

    i.b.nora I am polka dot

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    This is an interesting bit about Ben Bronz Academy, the private school that Justina had been attending until her fateful collapse (I don't know what else to call it) last February. It was posted in 2010.

    "Ben Bronz Academy is in Connecticut, and is as much a research lab for educational techniques as it is an an amazing school for bright children with learning disabilities. Ben Bronz uses a combination of Direct Instruction, Precision Teaching, Mediated Learning (Dr. Reuven Feuerstein) approaches. Tuition —hold your breath —is in the range of $35,000 U.S. per year. However, many of the children attending Ben Bronz Academy are children whose Public School Boards are paying their tuition under the Individuals with Disabilities Education Act (IDEA). See how far behind we are here in Canada? For an alternative that is available to all, though, have a look at the Cyberslate online option, offered on the Learning Incentive (Ben Bronz) website as a form of tutoring at a very reasonable cost."

    From:

    http://www.societyforqualityeducation.org/index.php/blog/oases-of-educational-excellence

    I wonder if the School Board or School District for West Hartford was paying the tuition for Justina? Or maybe making a partial contribution?
     
  21. Reader

    Reader New Member

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    From part 1 in the BG:

    Also says Dr. Flores the gastroenterologist was not allowed to see Justina.

    Explains some of the financial troubles:

    That complaint was dismissed. From Dr. Korson:

     
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