Looking for the Best Doctor who Treats Epilepsy

Pediatric or adult?

 

Is this adult or pediatric? Are you able to disclose whether this is accompanied by another condition?

 

Tricia,
As you may remember, I'm an RN in Texas. ( No longer working- kinda decided I was aging out).

This is the most brilliant doctor I know in the field of brain disorders. I'm posting, you certainly may PM but I wanted to give his name to EVERYONE who could need intervention involving intracranial or some spinal surgeries.
Please call his office. I do not know if he will see a person with Epilepsy if there are no other symptoms, but there's a very good chance he does the brain surgery to relieve epilepsy " misfirings".
I consider him to be a genius and a magnificent surgeon as well. You can check out his credentials online. He operates at Dallas Baylor University Hospital, the only place in Texas I'd have CNS surgery.


Caetano Coimbra, MD
Dallas, TX
Opens 8AM Mon · (972) 566-5200

God go with you and your friend or family member.

 

I would say there is not a single 'best' physician for any condition. Epilepsy (like cancer for example) is a complex and multi-faceted condition. You would not go to a breast cancer specialist for lung cancer treatment and vice versa. My former son-in-law's seizure disorder may have a completely different etiology from the next person. SO- I CAN recommend this site to help find an epilepsy specialist close to home:

What is an Epilepsy Center? - National Association of Epilepsy Centers

 

For a physician who treats adult epilepsy, I suggest:
Jocelyn Bautista, MD
(216) 636-5860

Jocelyn Bautista, MD, is board-certified in (1) Adult Neurology, (2) Clinical Neurophysiology, and (3) Epilepsy.

Her specialty interests include adult epilepsy, epilepsy surgery, familial epilepsy, evidenced-based medicine, psychogenic nonepileptic seizures, and quality of care in epilepsy.

Dr. Bautista's research has made her an "Epilepsy Hero." This is what I mean: Upon completing her epilepsy fellowship at The Cleveland Clinic she received an American Academy of Neurology clinical research training fellowship award to begin her own study of familial epilepsy and to pursue training in genetic epidemiology at Case Western Reserve University. Her work resulted in the identification of a gene responsible for a familial syndrome of generalized epilepsy and paroxysmal dyskinesia.

She has been on the staff of the Cleveland Clinic's Epilepsy Center since 2001.

I hope this information is helpful.

 

I don't have knowledge of who is the best so will just share ones who I have experience with

I have personal experience via my daughter who has epilepsy, with this physician who is an epileptologist at KU Medical Center in Kansas City:
Patrick Landazuri, M.D.
Patrick Landazuri, M.D.

And also via my daughter, with Barrows Neurological Institute in Phoenix, AZ:
Epilepsy Program | Barrow Neurological Institute
https://www.barrowneuro.org/centers-programs/epilepsy-and-meg/

I would highly recommend both

Both Barrows and KU Medical Center are Level Four Comprehensive Epilepsy Centers as designated by the National Association of Epilepsy Centers


Also, here is a list by state, of Epilepsy Centers, and includes center accreditation level and designation

All Epilepsy Center Locations - National Association of Epilepsy Centers
All Epilepsy Center Locations - National Association of Epilepsy Centers

 

The Neurology Center in San Diego county or any neurologist out of Scripps in San Diego.

 

There’s epilepsy centers in most cities. Penn in Philly, Weill Cornell in NYC, Johns Hopkins in Baltimore, etc. Those may be good starting points. Is his current neurologist any help?

I am speaking very generally here, and not trying to start a debate. Boston medicine tends to more conservative than Philly & NYC. Personally, I’d prob pick Philly or NYC for any issues for my family.

 

Just to say, I don't think ANY ONE ever thought ONE doctor is the only person to go to or the one who can cure when others can't.

Each of us uses our experience based recommendations, but some of us have truly been blessed to know exceptional healers who will take people other doctors don't think can be helped or healed.
Then, set about to zap that disorder into oblivion. If I hadn't worked in ICU for many years, I likely would not have recognized the overall excellence of the doctor I recommended. I've never seen anyone who does so well with the seemingly impossibly ill.
If there are doctors like him " everywhere", then this is truly a miraculous country full of super- healers.

 

Can vouch for Cleveland Clinic

 

Without knowing more about the type of epilepsy - and certainly not to add alarm! - but if there is any occular involvement, there’s Wills Eye in Philly. Wills is across the street from Jefferson, which has a neurological division (I know nothing about Jefferson) and I believe there’s some relationship between Wills & Jefferson neuro.

In general, it can be very helpful to have each provider cc the patient in all communications. Patient needs to explicitly tell provider at first visit. This is so convenient when you’re dealing with multiple providers in search of a diagnosis - some of which you’ll only see once and never again.

 

To add to Shamrock's post- persons with complex medical issues (everyone actually) would do well to keep a binder of all consultations, lab results, prescriptions etc in chronological order AND take it to every appointment. Much easier for a provider to flip through it and find the info they may need in real time than trying to access different electronic health records (EHRs) that may not 'talk' to one another. Scans and xrays can be downloaded onto a CD for this purpose as well.

 

I second Barrow Neurological in Phoenix. A-MAZING.
Epilepsy Program | Barrow Neurological Institute
https://www.barrowneuro.org/centers-programs/epilepsy-and-meg/

 

University of Utah medical center has a fairly impressive range of staff.

Division of Epilepsy - U of U School of Medicine - | University of Utah

I second getting in touch with consumer groups for contacts.

 

Dr Triffletti in New Jersey. While he never treated my family member he reviewed medical records and referred us to a colleague and spent many hours speaking to me by phone. He treated someone I knew and solved a very complex case

 

I sent you an email with my daughter's story and experience in her own words

 

Hi I emailed you with a recommendation and some info. on the Doctor.