Do you agree that they will be doing genetic testing? That's where the DNA comes into play. As for the research, it mentions 'research information', 'applied research', a 'research program', etc. I would assume (don't know...which is why I said the same earlier), the DNA would be kept/used for that research.
It doesn't need to directly state "mandatory", "dna" or "storage" for any of it to apply. You know, it also doesn't mention "suspected newborns", "affected newborns", "with parental consent" or even "select newborns". In fact, I noticed "3) make systematic evidence-based and peer-reviewed recommendations that include the heritable disorders that have the potential to significantly impact public health for which all newborns should be screened, including secondary conditions that may be identified as a result of the laboratory methods used for screening." and "(c) Approval Factors- An application submitted for a grant under subsection (a)(1) shall not be approved by the Secretary unless the application contains assurances that the eligible entity has adopted and implemented, is in the process of adopting and implementing, or will use amounts received under such grant to adopt and implement the guidelines and recommendations of the Advisory Committee that are adopted by the Secretary and in effect at the time the grant is awarded or renewed under this section, which shall include the screening of each newborn for the heritable disorders recommended by the Advisory Committee and adopted by the Secretary." (ETA: So, one could argue it's not mandatory, because it doesn't state the word 'mandatory'. However, it certainly implies it.)
