Found Alive UK - Ashya King, 5, Southampton, 28 Aug 2015

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Ellmau said:
There was a TV documentary on the BBC on Friday on the hospital staff's side of it. I didn't watch it because I thought it was a bit inappropriate for them to comment, even if they were right:

http://www.dailyecho.co.uk/news/national/news/12881746.Ashya_medics_reveal__hatred__ordeal/
Click to expand...

Thank you for posting this. The video is well worth viewing!
The hospital staff tell their side of the story. The family has been invited to take part, they declined.

[video=youtube;dUM-10ZQsHI]https://www.youtube.com/watch?v=dUM-10ZQsHI[/video]


The BBC has a media player that is only available in the UK, but fortunately the video has been posted on youtube.

IMHO the hospital staff needs to be heard. I do recommend the video.

I wonder about the role of the hospital in Marbella and the immunotherapy that Ashya did receive. The report does not mention them at all, the focus of the story is on the staff of Southampton General Hospital, the parents and the proton clinic in Prague.

:thinking:
 
Ellmau said:
This all brings us back to the question whether a parent can refuse treatment for a child. In the UK, the answer is legally no, so they may be right to fear that they would end up in court again if they persist in refusing chemotherapy. (I suppose it's not the case in Spain.) I certainly can't see them getting any written promises that it won't happen. But imo it is refusing chemo which is risking the child's life.

http://www.adviceguide.org.uk/wales...ces_in_wales/nhs_patients_rights_in_wales.htm

The court order which allowed Ashya to go to Prague and discharged the wardship (in retrospect, perhaps prematurely), implies that chemo was part of the treatment plan for Ashya, and that the parent's intentio =n of refusing it was not made clear to the court:



http://www.judiciary.gov.uk/wp-content/uploads/2014/09/judgment-ashya-king-08092014.pdf
Click to expand...

I know this was a while ago, but I thought it was worth pointing out the very similar case of Neon Roberts in this context:

http://www.bailii.org/cgi-bin/markup.cgi?doc=/ew/cases/EWHC/Fam/2012/3842.html
 
ASHYA KING HAS RETURNED TO THE UK WITH HIS FAMILY

Daily Mail
http://www.dailymail.co.uk/news/art...road-pioneering-treatment-UK-given-clear.html

Ashya King, the six-year-old cancer sufferer whose disappearance from a Southampton hospital last year sparked an international manhunt, has been brought back to live in the UK.

After being declared cancer-free in March, Ashya flew into Gatwick Airport with his family yesterday.

He said: ‘We are coming home to live and I am excited to be back. I want to see my grandma.’


BBM

The Sun has the big story - they flew the family home.
Video with Ashya at the link:

http://www.thesun.co.uk/sol/homepag...TheSunNewspaper-_-20150703-_-News-_-203641498


01_03120737_fd6402_2400193a.jpg
 
http://www.express.co.uk/news/uk/63...at-brain-cancer-returns-to-school-Southampton

The father of brain cancer survivor Ashya King has said he is "proud" as his son returns to school full time.

Brett King said the youngster was "doing very well" after recovering from proton beam therapy to treat his rare condition... "There are still a few issues - he is wobbly on his legs and his speech is a bit strained but he is a fighter, he does not give up and he is prepared to try anything"...

The proton therapy was not offered to Ashya on the NHS, although the health service later agreed to fund his treatment.
Click to expand...
 
PARENTS SAY BRAIN CANCER SURVIVOR ASHYA KING IS BEING REFUSED VITAL TREATMENT BY THE NHS

Mirror.co.uk
http://www.mirror.co.uk/news/uk-news/youre-still-failing-him-parents-10462249

Brain cancer survivor Ashya King is being refused vital treatment by the NHS – nearly three years after his family defied doctors to save his life, his parents claim.

(But) today Brett and Naghmeh believe NHS doctors have since joined forces to slam the door on rehabilitation treatment and vital regular checks for Ashya which is hindering his recovery and development.

He still needs medical help to fully recover, including physio and speech therapy. And the family are being forced to take Ashya on 2,600 mile round trips to a hospital near the youngster’s grandparents in Spain just to get MRI scans.

Naghmeh, 47, told the Sunday People : “It seems like some kind of revenge.”

And property developer Brett, 53 - a father of seven – said wherever they take Ashya in Britain “no one will treat him. They all kind of stick together.


BBM


While searching for updates about Ashya King, I was struck by the number of articles and comments that mention Ashya's case with reference to the battles between the hospital en the parents of terminally ill baby Charlie Gard.
How can these cases spiral out of control and explode like they do?

Charlie will die in the coming days, even hours, and the court has decided that his parents will not be given the week the requested to say goodbye to their firstborn. One wonders and worries if, should the parents of Charlie wish to have another child in the future, the NHS will support them as they would any other couple that has a 25% chance of passing a congenital disease to a child of theirs.

Sad.
 
If Charlie Gards parents choose to have another child they can get three person ivf which eliminates the chance of mito being passed on. Ironically the Catholic Church is opposed to this method of ivf.

The NHS will always treat any sick child, what they won't ever do is ignore the best interests of the child due to parents <modsnip> wishes.

I think the Gard case is very unusual and not likely to happen again often but they need to look at stopping a situation like this dragging on for so long. The poor child should have been let go many months ago. I feel desperately sorry for his poor parents but I felt sorrier for the child.

Ashya Kings case is quite different in that he wasn't terminally ill.
 
This thread is dedicated to discussion of Ashya’s case.

Please leave discussion of other cases in their own threads.

:tyou:
 
Mother who battled NHS over brain cancer treatment for her son separates from her husband | Daily Mail OnlineMother who battled NHS over brain cancer treatment for her son separates from her husband | Daily Mail Online

She also tells of Ashya’s progress. Today he remains cancer-free, but is profoundly disabled and faces many future battles.

‘He can go up the stairs by himself but he has to sit to come down,’ she says. ‘He can’t write properly yet, his hand shakes, but he is starting to read and do sums. He’s OK.’

The couple always maintained that proton beam treatment, which wasn’t then offered in Britain, was Ashya’s best chance. It aims radiotherapy directly at a cancer, minimising damage to surrounding brain cells.

The couple felt vindicated two years ago when a leading British child cancer specialist, Dr Juliet Gray, told them after reviewing Ashya’s brain scan: ‘I am pleased to say there is no sign of any tumour recurrences and there is nothing that requires any urgent interventions.’


BBM


The parents have separated. The mother has walked out on the father, albeit temporarily, she cites religion as the main source of tension.

But following Ashya’s treatment, Naghmeh says her husband grew increasingly obsessed and fixated with the possibility that the cancer would return. At the same time, she says, the ‘Jehovahs were dominating our lives’.
 
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