One more. YOu might need an account to read this, but I will include it.
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Old 03-10-2009, 08:02 AM #1
irangel
Registered
Join Date: Aug 2005
Posts: 2,160
the hospital jig *screams*
Midnight early Monday morning we came to the ER because my brilliant 3yr old turned her feeding pump rate up and started dumping severely. Since she has a kidney disorder that affects her electrolytes and a history of aspiration we felt it was best to make sure nothing was off. They admitted us for observation. When we came she was mildly dehydrated but they felt like once she started her normal continuous feeds her fluid status would improve so there was no need to do IV replacement. Monday during the day it became apparent that she wasn't peeing. Her feeds seemed to be going okay at 70ml/hr but her belly was very bloated and there was absolutely no pee. They did a bladder scan and found something like 130mls in her bladder which they said was less than they'd expect. They repeated labs and she was slightly more dehydrated even with her feeds. Not long after the labs she started dumping again rather severely (339 output of diarrhea in 4.5hrs) and they shifted gears to put her on IV replacement at 4pm running at 44ml/hr.
Last night's labs looked more concerning, her potassium had plummetted (this is due to her kidney disorder) she was alkalotic (also from her kidney disorder) but there were no signs of dehydration from fluid loss (sodium and chloride were totally normal, kidney function looked good). At 4am when there was still no pee and it had been 31hrs sans pee, they did another bladder scan and she only had 25ml in her bladder. This morning's labs looked totally normal after they treated her kidney disorder by giving her meds and changing her IV solution. But yet, still no pee. They did a bladder scan a short while ago and found 160mls in her bladder so there is a little pee, nothing like their should be but it's there. *screams*
Where the heck did the 120ml they found in her bladder yesterday go?!?! Why wont she just pee?!?! Why do they keep telling me that she's dehydrated due to the diarrhea when her labs give absolutely no indication of that and she's not had diarrhea for 16hrs?!?! The junior resident just came in to say that they'll give her until 1pm to pee out what's in her bladder and if she hasn't by then they'll draw another BMP. I don't know when I should get concerned and they're being unbelievably vague. Not to mention that once we do get her peeing we have to tackle the GI problems. I have no clue what kind of damage she may have done to her stomach but her gut just seems to have shut down.
Hopefully today we'll get more answers but at least she's feeling much better since they stopped her g-tube feeds. Her belly isn't nearly as bloated and her oxygen needs have come down as a result. So much for our short 24hr observation... The word "discharge" hasn't even been uttered.
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Emily wife to Rafferty mom to Madison ('03), Julian ('05), and TPN and oxygen dependent Dakota ('06)
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